The Story Within: Personal Essays on Genetics and Identity

"A compelling collection of essays that address the experiences of many who have genetically based illnesses." —Library Journal

The contributors to The Story Within share powerful experiences of living with genetic disorders. Their stories illustrate the complexities involved in making decisions about genetic diseases: whether to be tested, who to tell, whether to have children, and whether and how to treat children medically, if treatment is available. More broadly, they consider how ge...