An Extraordinary/Ordinary Life

An Extraordinary Ordinary Life: Insights from Parenting a Disabled Child explores the eventful life of Curtis, born with a rare partial chromosome deletion, as experienced by his mother, Lucy.

These stories and reflections are drawn from 50 years of parenting, preserved in notebooks, diaries, scrapbooks and art therapy journals. Like a spiral, the book centers on the role of the parent or caregiver, then looks outward to the child, the family, and to educational, medical, and other organizat...