Beyond the Grip of Craniosynostosis: An Inside View of Life Touched by the Congenital Skull Deformity

Both a memoir and a medical study, this unique work explores the extensive and tragic reach of craniosynostosis, the premature fusing of the cranial sutures in infants. The author--born with craniosynostosis in 1975--documents his and his family's struggles, weaving his story into a broader view of this birth defect. Included are interviews with respected craniofacial surgeons, neurosurgeons and pediatric anesthesiologists, an explanation of the major types of craniosynostosis, and a summa...