Childhood Onset Severe Neurological Impairment: Where medical complexity and uncertainty meet

Childhood Onset Severe Neurological Impairment confronts the uncertain decisions resulting from the intersection between what is intended and what is possible, to achieve the best certainty that lessens decisional regret. Evidence-based and hypothesis-driven strategies are offered to improve health, while a framework covers when and how to reflect with parents and guardians, utilizing an iterative process.

Specific circumstances include intractable symptoms, feeding intolerance, intestinal f...