Critical perspectives on user involvement

by Marian Barnes (Editor), Phil Cotterell (Editor)

Overview

Drawing on contributions from user activists and academic researchers, this topical reader provides a critical stock take of the state of user involvement. It considers different contexts in which such involvement is taking place and includes diverse and sometimes conflicting perspectives on the issues involved. This original and insightful critique will be an important resource for students studying health and social care and social work, researchers and user activists.

Product Details

ISBN-13:	9781847427502
Publisher:	Bristol University Press
Publication date:	02/01/2012
Edition description:	First Edition
Pages:	296
Product dimensions:	6.10(w) x 9.10(h) x 0.70(d)

About the Author

Marian Barnes is currently Professor of Social Policy at the University of Brighton. She has both researched and worked with service user and carer groups for over 20 years and has also studied public participation in different policy contexts. Phil Cotterell has a nursing background and while working in palliative care developed an active interest in service user involvement. Since then he has worked with many service user groups and individuals with a focus on research. He is currently a clinical nurse specialist in palliative care at St Catherine's Hospice, Crawley, West Sussex and formerly a senior research fellow at the University of Southampton.

Table of Contents

Notes on contributors v

Introduction: From margin to mainstream Marian Barnes Phil Cotterell xv

Part 1 Introduction: user movements Marian Barnes Phil Cotterell 1

1 Survivors History Group takes a critical look at historians Survivors History Croup 7

2 The Nottingham Advocacy Croup: a short history Marian Barnes Colin Cell 19

3 Building solidarity, ensuring diversity: lessons from service users' and disabled people's movements Peter Beresford Fran Branfield 33

4 Service users and the third sector: opportunities, challenges and potentials in influencing the governance of public services Graham P. Martin 47

5 The capacity, impact and challenge of service users' experiential knowledge Phil Cotterell Carolyn Morris 57

Part 1 Questions for reflection 70

Part 2 User involvement in services Marian Barnes Phil Cotterell 73

6 Collaboration in public services: can service users and staff participate together? Michelle Farr 79

7 Changing patterns of service user involvement, 1990-2010 Clare Evans Ray Jones 89

8 Looking out from the middle: influencing policy change through user involvement Joe Duffy Brendan McKeever 101

9 Changing minds: unleashing the potential of mental health service users - a critical perspective on current models of service user involvement and their impact on wellbeing and 'recovery' Stephanie McKinley Sarah Yiannoullou 115

10 Moving forward: understanding the negative experiences and impacts of patient and public involvement in health service planning, development and evaluation Sophie Staniszewska Carole Mockford Andy Gibson Sandy Herron-Marx Rebecca Putz 129

Part 2 Questions for reflection 142

Part 3 User involvement in research Marian Barnes Phil Cotterell 143

11 Young mothers' experiential knowledge and the research process Geraldine Brady Geraldine Brown Corinne Wilson 149

12 Involving young people in research: making an impact in public health Louca-Mai Brady Ellie Davis Amrita Ghosh Bhavika Surti Laura Wilson 159

13 Projects through partnership: promoting participatory values throughout the research process Robert Kirkwood 169

14 Involving older people in research: empowering engagement? Lizzie Ward Beatrice Gahagan 181

15 'Still out there?' Is the service user voice becoming lost as user involvement moves into the mental health research mainstream? Kati Turner Steve Gillard 189

16 Service user-led research in the NHS: wasting our time? Patsy Staddon 201

17 Should we? Could we? Measuring involvement Rachel Purtell Wendy Rickard Katrina Wyatt 209

18 Evaluating the impact of public involvement on research Rosemary Barber Jonathan Boote Glenys Parry Cindy Cooper Philippa Yeeles 217

Part 3 Questions for reflection 224

Conclusion: Critical and different perspectives on user involvement Marian Barnes Phil Cotterell 225

References 235

Index 263

What People are Saying About This

From the Publisher

"Compulsory reading for anyone who's serious about research or transforming services to deliver authentic person-centred support. This book offers a unique opportunity to learn from the accumulated experience and expertise of leading service user researchers and activists along with practitioner collaborators and academic allies. " Sarah Carr, Social Care Institute for Excellence, London and Staffordshire University

"A stimulating book, exploring the origins and rich diversity of service user involvement in health and social care." Ann Davis, University of Birmingham

Editorial Reviews

"This is a great book full of informative and insightful views which translate easily into the students experience and theoretical understanding" William McGovern, Northumbria University

"A very valuable resource that brings service user/careers perspectives together" Ann Anka, Havering College of Further and Higher Education

From the Publisher

"Compulsory reading for anyone who’s serious about research or transforming services to deliver authentic person-centred support. This book offers a unique opportunity to learn from the accumulated experience and expertise of leading service user researchers and activists along with practitioner collaborators and academic allies. "

Sarah Carr