About the Author
Table of Contents
Contents: Preface; Introduction; Part 1 Political Regulations and Institutions: Biobank governance: property, privacy and consent, Roger Brownsword; Population genetic databases: a new challenge to human rights, Roberto Andorno; Intellectual property rights and the right to health: considering the case of access to medicines, Alyna C. Smith; International protection of human genetic data – the UNESCO declaration on human genetic data and the possible impact on genetic governance models, Tobias Schulte in den Bäumen; TRIPS jurisprudence in the balance: between the realist defence of policy space and a shared utilitarian ethic, Antony Taubman. Part 2 Science and Intellectual Property: Exclusive property rights in the biosciences: an ethical discussion, Christian Lenk; Enclosing the 'knowledge commons': patenting genes for disease risk and drug response at the university-industry interface, Bryn Williams-Jones and Vural Ozdemir; Reconceptualizing genetics: challenges to traditional medical ethics, Heather Widdows; Lack of access to essential drugs: a story of continuing global failure, with particular attention to the role of patents, Sigrid Sterckx; Out of touch: from corporeal to incorporeal, or Moore revisited, Nils Hoppe. Part 3 Distribution, Licensing and Protection of Intellectual Properrty: Knowledge and information – private property or common good? A global perspective, Rainer Kuhlen; The limit of balancing interests through copyright levies, Lucie Guibault; The institutional nature of the patent system: implications for bioethical decision-making, Sivaramjani Thambisetty; Why people give information freely: internet architecture and the rebirth of folkloric culture, John Cahir; Index.