Henry and His Ichthyosaurus

I wrote Henry and His Ichthyosaurus for my son, Hayden, who was born with a rare skin disorder called Epidermolytic Ichthyosis (EI). When he was diagnosed, our family had never heard of it — and we quickly realized most others hadn't either. As Hayden approaches school age, I've found myself feeling a mix of hope and worry. I notice the stares, hear the comments, and feel the judgment when we're out in the world. This book is my way of shining a light on EI and reminding children who look o...