"Out Of Breath" is the story of Sean Henderson and his diagnosis at age 8 with Proteus Syndrome. Sean treated his illness as a separate thing and continued to live his life fully and with purpose, guided by his beautiful faith. He lived a charmed life in spite of his disease. His love of animals and his sense of humor was legendary, in spite of having spent most of his life in hospitals. He encouraged so many people with his gentle spirit, kindness, and courage.