Parkinson's Warrior: Fighting Back and Taking Control

Parkinson's Warrior: Fighting Back and Taking Control

by Nick Pernisco

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Overview

Nick Pernisco was busy with a promising academic career when one day he noticed his left arm had stiffened and become immobile. After two years of tests, he was eventually diagnosed with Young-Onset Parkinson’s Disease at age 33. He fell into a deep depression and hit rock bottom, nearly losing everything. This is the story of what came next. Determined to turn his life around, Nick learned all he could about Parkinson’s, including everything about the benefits and side effects of Parkinson’s medications, the potential and limitations of natural therapies, the importance of proper nutrition, and the need for physical and emotional fitness. He began eating better, exercising regularly, and re-engaging with society. He changed his thinking about life and disease and adopted a positive attitude. He began fighting back with a warrior mentality. It worked.

In PARKINSON'S WARRIOR, Nick shows that you don’t need to give up your dreams because your body is not working as it should. He tells the story of how he came to terms with Parkinson’s and shows that, through fitness, community, and positivity, the path is open for all People With Parkinson's to live better, happier, and healthier lives.

Product Details

ISBN-13: 9780578418230
Publisher: Connected Neurosciences LLC
Publication date: 03/05/2019
Pages: 230
Product dimensions: 6.00(w) x 9.00(h) x 0.48(d)

About the Author

In 2011 Nick was diagnosed with Parkinson's disease - a disease typically affecting those over 60 - at age 33. After enduring a prolonged period of depression, he found a way to move beyond his grief and fight back by taking control of his disease, and using his experiences to educate and advocate for others. From this mission, the Parkinson's LifeKit app was born. The app is used by thousands of Parkinson's patients to help them take control by tracking symptoms and fitness, managing medication, and more accurately reporting on their condition to their doctors. In 2018 he launched Parkinson's Warrior, a Parkinson's news and resource website, which serves as a guide to adopting a Warrior Mindset to take control of each day and each battle in pursuit of improved quality of life.

In addition to being an author, app developer, and advocate, Nick is also a media studies professor. He has lived in Buenos Aires, Los Angeles, Seattle, and most recently, Amsterdam, where he lives with his wife and two cats.

Table of Contents

Parkinson’s Warrior

Preface

Introduction

Chapter 1: My Parkinson’s Story

The First Symptoms

Diagnosis

Facing the Music

The Downward Spiral

The Turning Point

Chapter 2: What Is Parkinson’s, Anyway?

The Ballsy Palsy

The Five Stages of Parkinson’s

Causes

Parkinson’s Symptoms

Prognosis

Physical Well-being

Emotional Well-being

Cognitive Well-being

Chapter 3: Awakening Your Inner Parkinson’s Warrior

Going to War

After Grief

Motivation

Set Small, Measurable Goals

Develop a Mantra

Commit Wholeheartedly and Publicly

Maintain Your Optimism

Determination

What Are Your Goals?

Make the Decision

Find Your Why

Prioritize Your Goals

Perseverance

Keep Your Why in Mind

Take Any Step Forward

Go at Your Own Speed

Ignore the Negative Voices

The War is Never Ending

Chapter 4: Your Care Team

Loved Ones

Primary Doctor

Movement Disorder Specialist

Naturopath

Physical Therapist

Occupational Therapist

Neuropsychologist

Neuropsychiatrist

Pharmacist

Support Staff

Chapter 5: Physical Fitness

Yoga

Tai-Chi

Cycling

Walking

Weights

Boxing

CrossFit

Dancing

Singing

Something Unconventional: Pinball

Do What Works for You

Tracking Physical Fitness

Chapter 6: Emotional Fitness

Depression

Anxiety

Stress

Mindfulness

Meditation

Support Groups

Tracking Emotional Fitness

Chapter 7: Cognitive Fitness

Memory

Thinking

Decision Making

Compulsion

Hallucinations

Vivid Nightmares

Dementia

Practice Active Cognition

Tracking Cognitive Fitness

Chapter 8: Nutrition

Neuroprotective Foods

Caffeine – Coffee and Tea

Alcohol

Meat

Carb / Protein Balance

Vitamins C, D, and E

Tracking Nutrition

Chapter 9: Medications

Sinemet

Dopamine Agonists

Anti-dyskinesia

MAO-inhibitors

Anti-depressants

Beta Blockers

Tracking Medications

Chapter 10: Supplements

A Few Words About Supplements and Science

Vitamin C

Resveratrol

Vitamin D

Green Tea Extract

Curcumin

Creatine

Coenzyme Q10

Omega-3 Fatty Acid

Tracking Supplements

Chapter 11: Medical Marijuana

Western views

A Short Intro

Battling Pain

Battling Depression

Tremors and Dyskinesia

More Research Needed

Chapter 12: Advanced Therapies

DBS

Duopa Pump

Chapter 13: What Does the Future Hold?

New Drug Delivery Methods

Nicotine

Stem Cells

Gene Therapy & CRISPR

Experimental Therapy: Low-Dose Naltrexone (LDN)

Experimental Therapy: Glutathione Inhaler

New research on the horizon

Get involved in clinical studies!

Chapter 14: Keep Doing What You’re Doing: Work, Learning, Play

Work

Will Revealing Your Diagnosis at Work Lead to Career Suicide?

Keep Learning

Social Life

Accommodations

Disability

Chapter 15: Thriving

Stay Positive

Be Grateful

Know Yourself

Minimize Stress

Don’t Worry

Don’t Regret

Redefine Productivity

Listen to Your Body

Don’t Give Up on Yourself or Your Dreams

Finding the Courage to Move Forward

Plan for The Unexpected

Become an Advocate

Don’t Give Up

Appendix A: Resources

Parkinson’s Organizations

Online Support Groups

Parkinson’s Journals and Newsletters

Further Reading

Books

Websites

Appendix B: References

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