Saving Ryan: The 30-Year Journey Into Saving the Life of a Child.

Saving Ryan is the inspiring story by physician-scientist Dr. Emil Kakkis about his journey to develop a new, first-ever treatment for an ultra-rare genetic disease called MPS. The scientist had great challenges getting grant and industry support for this rare disease despite the solid science behind doing the treatment. Simultaneously across the country, Mark Dant was in a quest to save his 9-year-old son, Ryan, afflicted by MPS for which there was no cure. Through extraordinary persistenc...