Spastic Diplegia--Bilateral Cerebral Palsy: Understanding the motor problems, their impact on walking, and management throughout life: a practical guide for families

by Lily Collison MA MSc, Jean Stout PT MS (Editor), Tom F. Novacheck MD (Editor)

Overview

An empowering and evidence-based guide for living a full life with spastic diplegia-bilateral cerebral palsy.

'A must-read for professionals, parents, and the individual with CP.'-Deborah Gaebler-Spira, MD

'This detailed and practical book on spastic diplegia, written by a parent in conjunction with medical practitioners at Gillette, is simply brilliant and fills a huge gap.'-Lori Poliski, parent

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Cerebral palsy (CP) is the most common cause of childhood-onset lifelong physical disability. Approximately one-third of those with CP have the subtype spastic diplegia-also known as bilateral spastic CP, or simply bilateral CP. An estimated 6 million worldwide have spastic diplegia. Until now, there has been no book focused on this condition to help this large group of people. This book focuses on the motor problems-problems with bones, muscles, and joints, and their impact on walking. The Gross Motor Function Classification System (GMFCS) is a five-level system that indicates the severity of the condition. This book is relevant to those at GMFCS levels I to III: those who are capable of walking independently or with a handheld mobility device. These three levels account for the majority of people with spastic diplegia.

The book addresses how spastic diplegia develops over the lifespan and explains the evidence-based, best-practice treatments. It empowers parents of young children, and adolescents and adults with the condition, to become better advocates and co-decision makers in the medical process. The focus of this optimistic, yet practical book is on maximizing activity and participation-living life to its fullest. Health care professionals, educators, students, and extended family members will also benefit from reading this book. Indeed, while this book focuses on spastic diplegia, much of what is addressed also applies to other forms of spastic CP at GMFCS levels I to III, namely hemiplegia and quadriplegia.

Written by Lily Collison, a parent of a son with spastic diplegia and a medical sciences graduate, in close collaboration with senior medical experts from Gillette Children's Specialty Healthcare-a world-renowned center of excellence for CP treatment-this is an excellent, long-needed resource for spastic diplegia. _______________________________

'I highly recommend this book to people who have CP, parents, family members, and medical professionals.'-Hank Chambers, MD

'A must-read for parents and children with spastic diplegia, and if its guiding principles are followed, it will do much to ensure that their child reaches maturity with an optimal outcome.'-James R. Gage, MD

Product Details

ISBN-13:	9781952181009
Publisher:	Gillette Children's Specialty Healthcare
Publication date:	02/05/2020
Pages:	368
Product dimensions:	6.69(w) x 9.61(h) x 1.00(d)

About the Author

Lily Collison, MA, MSc, is the parent of an adult with spastic diplegia. In addition to raising her son, she studied the condition extensively including completing a research study in cerebral palsy for a Master of Science degree in 2008. She has now written Spastic Diplegia-Bilateral Cerebral Palsy in conjunction with senior medical staff at Gillette Children's Specialty Healthcare. Lily has three adult sons, and lives in Ireland with her husband. She runs every day and enjoys fitness, food, reading, and travel.

Jean Stout, PT, MS, Research Physical Therapist at the James R. Gage Center for Gait and Motion Analysis, Gillette Children's Specialty Healthcare, St. Paul, Minnesota, USA.

Tom F. Novacheck, MD, Associate Medical Director at Gillette Children's Specialty Healthcare, Professor of Orthopedics at the University of Minnesota, and Vice-President, American Academy for Cerebral Palsy and Developmental Medicine.

Table of Contents

Author and Editors xi

Foreword by Dr. Tom F. Novacheck xiii

Preface xv

1 Cerebral Palsy (cp) 1

1.1 Introduction 2

1.2 Causes, risk factors, and prevalence 7

1.3 Diagnosis 12

1.4 The International Classification of Functioning,

Disability and Health (ICF) 16

1.5 Motor function, gross motor milestones 22

1.6 Classification of CP 27

Key points Chapter 1 44

2 Spastic Diplegia—Bilateral CP 47

2.1 Introduction 48

2.2 The brain injury 53

2.3 Growth 56

2.4 Bones, muscles, joints, and movements 62

2.5 Normal walking 69

2.6 Primary abnormalities 72

2.7 Secondary abnormalities 80

2.8 Tertiary abnormalities 94

2.9 Walking in individuals with spastic diplegia 96

Key points Chapter 2 104

3 Management and Treatment of Spastic Diplegia—Bilateral CP to Age 20 107

3.1 Introduction 108

3.2 What does best practice look like? 111

3.3 Therapies 123

3.4 The home program 144

3.5 Orthoses 158

3.6 Tone reduction 166

3.7 Orthopedic surgery 178

3.8 The overall musculoskeletal management plan to age 20 193

3.9 Alternative and complementary treatments 197

3.10 What the parent can do to help the child, what the

adolescent can do to help themselves 201

Key points Chapter 3 214

4 The Adult with Spastic Piplegia—Bilateral CP 217

4.1 Introduction 218

4.2 Aging in the typical population 222

4.3 Aging with spastic diplegia 228

4.4 Management and treatment of spastic diplegia in adulthood 240

Key points Chapter 4 253

5 Living with Spastic Diplegia—Bilateral CP 255

6 Further Reading 269

Epilogue by Tommy Collison 277

Acknowledgments 281

Editorial Reviews

"This book provides the answers we have all been looking for ... the perfect balance of science and practical knowledge ...With a resource of this quality, the future is bright for all of us."

--Dr. Linda A Hallman, parent of teenager with spastic diplegia, Director of Orthodontics, Children's National Medical Center, Washington DC

"Spastic Diplegia–Bilateral Cerebral Palsy is a must-read for parents of children with spastic diplegia, and if its guiding principles are followed, it will do much to ensure that their particular child reaches maturity with an optimal outcome."

--Dr. James R. Gage, MD and past president of the American Academy for Cerebral Palsy and Developmental Medicine

"This book is excellent, insightful, and educational: it will open minds and touch hearts. It is very clear and easy to read. As an adult with spastic diplegia, I have learned many new things about my condition from reading it."

--Samantha Marie Lademann, adult with spastic diplegia, Minnesota, USA

"This co-developed parent-professional book on the focused topic of spastic diplegia is a must-read for professionals, parents, and the individual with cerebral palsy (CP). The range of the book is "real-world focused" with the latest accurate literature incorporated ... It serves a unique educational niche ... I am recommending it already!

--Dr. Deborah Gaebler-Spira, MD and Director Cerebral Palsy Program, Shirley Ryan AbilityLab

"As a pediatric orthopedic surgeon who specializes in the care of children and adults with CP, as well as being the father of a 37-year-old man who has CP, I highly recommend this book to people who have CP, parents, family members and medical professionals."

--Dr. Hank Chambers, MD and Professor of Clinical Orthopedic Surgery, University of California

"This book provides a comprehensive overview of all aspects of living with bilateral spastic CP ...The combination of evidence-based information and personal experience ensures that this book is an engaging and thought-provoking read, which families and health professionals would benefit from owning."

--Dr. Jennifer Ryan, Research Lecturer, Royal College of Surgeons in Ireland, Dublin

From the Publisher