When Your Child Is Sick: A Guide to Navigating the Practical and Emotional Challenges of Caring for a Child Who Is Very Ill

When Your Child Is Sick: A Guide to Navigating the Practical and Emotional Challenges of Caring for a Child Who Is Very Ill

by Joanna Breyer


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An invaluable reference for parents of sick or hospitalized children by an experienced psychosocial counselor.

To many parents, it is hard to imagine a more upsetting reality than one where their child is hospitalized, severely sick, or terminally ill. In When Your Child is Sick, psychosocial counselor Joanna Breyer distills decades of experience working with sick children and their families into a comprehensive guide for navigating the uncharted and frightening terrain. She provides expert advice to guide them through the hospital setting, at-home care, and long-term outcomes.

Breyer's actionable techniques and direct advice will help parents feel more in-control of a circumstance that has upended their life. She alerts parents to key personnel in the hospital, gives dialogue prompts to help parents ask for the help they need, addresses the needs of their other children at home, offers advice on how to best utilize friends and family who want to help, includes stories from other families who have been there, and teaches coping techniques to help both parents and children weather the stress of prolonged illness and even death.

When Your Child is Sick is a valuable guide to managing the myriad practical and emotional complications of an impossible situation.

Product Details

ISBN-13: 9780147517586
Publisher: Penguin Publishing Group
Publication date: 06/26/2018
Pages: 448
Product dimensions: 5.90(w) x 8.90(h) x 1.20(d)

About the Author

Joanna Breyer was educated at Oxford and Harvard where she got her psychology doctoral degree in 1983. As a psychologist she worked with children with cancer and their families for over 25 years at Dana Farber Cancer Institute (DFCI) and Children's Hospital Boston. She worked in the David B. Perini Quality of Life Clinic for Survivors of Childhood Cancer for over 10 years. She is married to Supreme Court Associate Justice Stephen Breyer.

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Chapter 1

Excerpted from "When Your Child Is Sick"
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Copyright © 2018 Joanna Breyer.
Excerpted by permission of Penguin Publishing Group.
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Excerpts are provided by Dial-A-Book Inc. solely for the personal use of visitors to this web site.

Table of Contents

Introduction ix

Part 1 On Treatment

Chapter 1 Entering the Medical World 3

Chapter 2 How You Cope in the Hospital 21

Chapter 3 Babies, Toddlers, and Preschool Children 41

Chapter 4 School-Age Children and Adolescents 55

Chapter 5 Your Other Children 67

Chapter 6 When to Consult with a Psychosocial Clinician 78

Chapter 7 An Introduction to Coping Techniques 86

Chapter 8 Coping Techniques: Breathing and Relaxation 94

Chapter 9 Distraction and Affirmations 104

Chapter 10 Imagery and Self-Hypnosis 114

Chapter 11 Making Plans to Manage a Procedure 123

Chapter 12 Taking Medications 131

Chapter 13 A Stem Cell Transplant 146

Chapter 14 Stem Cell Transplants: Siblings as Donors 164

Chapter 15 When You Get Home 172

Part II Survivorship

Chapter 16 Transition to Survivorship 191

Chapter 17 Childhood Cancer Survivors 198

Chapter 18 Emotional Effects of a Serious Childhood Illness 225

Chapter 19 Healthy Living 242

Chapter 20 When Your Child Becomes an Adult: The Transition to Adult Medical Care 248

Part III When Your Child's Treatment Does Not Work

Chapter 21 Challenges for Parents 267

Chapter 22 Giving Your Child Bad News 284

Chapter 22 Grief and Bereavement 309

Acknowledgments 329


A Resources from Foundations, Organizations, or Government Agencies 332

B Online Support and Information Websites 359

Notes 381

Bibliography for Parents 393

Children's Book List 400

Index 415

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