Direct-to-Consumer Genetic Testing: Summary of a Workshop
By National Research Council, Institute of Medicine, Board on Health Care Services, National Cancer Policy Forum, Board on Health Sciences Policy, Roundtable on Translating Genomic-Based Research for Health, Forum on Drug Discovery, Development, and Translation, Division on Earth and Life Studies, Board on Life Sciences, Policy and Global Affairs, Committee on Science, Technology, and Law, Anne-Marie Mazza (Selected by), Mary Fraker (Selected by)
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Today, scores of companies, primarily in the United States and Europe, are offering whole genome scanning services directly to the public. The proliferation of these companies and the services they offer demonstrate a public appetite for this information and where the future of genetics may be headed; they also demonstrate the need for serious discussion about the regulatory environment, patient privacy, and other policy implications of direct-to-consumer (DTC) genetic testing.
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