Ethics and Research with Children: A Case-Based Approach

Ethics and Research with Children: A Case-Based Approach

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Product Details

ISBN-13: 9780190647254
Publisher: Oxford University Press
Publication date: 12/24/2018
Edition description: New Edition
Pages: 344
Product dimensions: 9.40(w) x 6.40(h) x 1.00(d)

About the Author



Eric Kodish, MD is Professor of Pediatrics at the Lerner College of Medicine, Cleveland Clinic.

Robert M. Nelson, MD, PhD is Senior Director of Pediatric Drug Development in the Child Health Innovation and Leadership Department (CHILD), Johnson & Johnson.

Table of Contents



Chapter 1: Ethics and Research with Children: Introduction to the Second Edition
Eric Kodish and Robert M. Nelson

Chapter 2: Ethical Challenges Related to Participation of Adolescents and Young Adults with Intellectual Disability in Research
Pamela Nathanson, Theodore Schall, and Chris Feudtner

Chapter 3: Ethical Challenges Conducting Pediatric Research in the Era of Scarce Drugs
Yoram Unguru

Chapter 4: Catastrophically ill children, access to unregistered medical interventions and trial recruitment needs: an ethical analysis
Thomas Hartvigsson and Udo Schuklenk

Chapter 5: Ethical Issues in the Neonatal Surfactant, Positive Pressure and Oximetry Randomized Trial
John D. Lantos

Chapter 6: Invasive Placebos, Patient Burdens and Community Advocacy: A Federal Ethics Panel Protocol Review
Donna Snyder, Catherine Lee, Robert Nelson

Chapter 7: When if ever, is it ethical to do research in developing countries that could not be done ethically in developed countries?
Lainie Friedman Ross, MD, PhD

Chapter 8: The Welfare of Children, Research Ethics and the Bucharest Early Intervention Project
Maria Master and Joseph Fins

Chapter 9: Ethical Issues in Genetic Research with Infants: Biospecimen Use and Genome Sequencing
Erin Rothwell and Jeffrey Botkin

Chapter 10: Parental Permission for Neonatal Clinical Trials
Benjamin Wilfond and Anita Shah

Chapter 11: Communication and Decision-Making with Parents and Seriously Ill Children about Phase 1 Research Trials
Melissa K. Cousino, Wynne E. Morrison, and Victoria A. Miller

Chapter 12: Involving Parents and Children in Community Engaged Research: Ethical Considerations
Erin Talati Paquette and Lainie Friedman Ross

Chapter 13: Social Media and Pediatric Research Recruitment
Luke Gelinas and Jennifer Cohn Kesselheim

Chapter 14: Payments for Participation of Children in Research
Douglas S. Diekema

Chapter 15: Clinical innovations near the boundary of viability - the artificial womb
Ryan Antiel and Alan W. Flake

Chapter 16: Synthesis and Concluding Reflections
Robert M. Nelson and Eric Kodish

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