Things I Wish I'd Known: Cancer Caregivers Speak Out

Things I Wish I'd Known: Cancer Caregivers Speak Out

by Deborah J Cornwall

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Family caregivers are the unsung heroes of the life-saving drama that's triggered by a cancer diagnosis. No first-time caregiver should face cancer caregiving without this book in hand. It offers keys to unlocking the dilemmas of cancer caregiving so you can take charge as a knowledgeable advocate for your patient.Nearly three quarters of American households will find themselves caring for a cancer patient at one point in their lives.

This book is the first to capture their thoughts, feelings, and insights on a large scale. It is based on 95 formal interviews with non-professional caregivers (some of whom are cancer survivors themselves), covering 117 patients ranging in age from 2 to 92 and facing 40 different cancer diagnoses. Practical lessons drawn from caregivers' experiences are intermingled with their own words to forge a compelling narrative intended to help both patients and their family caregivers to understand and cope with the full range of issues they should anticipate as they fight the battle of their lives.

The lessons provide a building block on which you can rely as you participate in decision-making and plan for the future.

You will learn about caregiver considerations in:

Getting a clear diagnosis

Gathering information

Choosing treatment partners

Making treatment decisions (including complementary and
alternative treatments and palliative care)

Getting inside the caregiver role

Accessing available resources (including clinical trials)

Managing financial and legal issues

Seeking normalcy during treatment

Confronting issues facing families with children
(children in a household with cancer, and children as patients)

Managing caregiver emotions and health

Nearing life's end

Preparing for the aftermath (including caregiver healing)

Anticipating how cancer changes caregivers

Caregivers are the critical partners in helping cancer patients--especially those whose lives are at risk--to cope with treatment while sustaining routine daily activities. Patients vary in how each responds to even standard treatments, so each caregiver must invent his or her own way every day, based on an ever-changing set of circumstances.

A University of California Study estimated that the stress of caregiving can take as many as 10 years off a family caregiver's life. Lessons from experienced caregivers can build the new caregiver's stock of ideas and solutions and help accelerate needed learning while reducing the most avoidable stresses.

Product Details

BN ID: 2940015038644
Publisher: Bardolf and Company
Publication date: 01/15/2016
Sold by: Barnes & Noble
Format: NOOK Book
Pages: 266
Sales rank: 648,691
File size: 4 MB

About the Author

Deborah J. Cornwall has been associated with the American Cancer Society and its Cancer Action Network as a volunteer leader since 1994, performing a variety of local, regional, and national roles and serving as a media spokesperson before audiences ranging from 16 to 30,000. Her passion to write this book was ignited by her interaction with cancer patients and caregivers at the Society’s AstraZeneca Hope Lodge Center in Boston. In 2013, she was awarded the St. George National Award by the National Board of the American Cancer Society in honor of her many contributions to the fight against cancer. Professionally she consults with boards of directors and CEOs on leadership, CEO succession, governance, and change issues as Managing Director of The Corlund Group LLC.

Words from the Author--Why I Wrote This Book: I had been a volunteer with the American Cancer Society for years before my own cancer diagnosis. My cancer was minimal and easily treated, unlike that of many others whom I've met along the way. Gradually my involvement with the Society migrated from board policy and fund-raising work to community-based work where contacts are very personal.

In my own community and at the Society’s AstraZeneca Hope Lodge, I came in contact with people whose cancer survival and caregiving stories were much more trying than my own. Generous with their stories, they wanted to share the lessons they had learned (often the hard way). I realized I could use my proven interviewing and writing skills to help them do that. These ingredients hatched a dream that made Things I Wish I'd Known a reality.

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