When the Baby Is Not OK: Hopes & Genes

What if the baby is not OK? Out of nearly four million who get newborn screening each year, about 12,000 babies are diagnosed with a "rare disease" in the US alone. Jennifer J. Brown's daughters were two of them. It was in their genes. As a student who thought about being a scientist first, and becoming a mother second, the news changed her life forever. This intimate memoir of pregnancy, childbirth and raising special kids revises the story of what to expect with hope. By turns heartbreaki...