Being Emma: Living My Best Life with Butterfly Skin

Born with Epidermolysis Bullosa (EB), a rare and excruciatingly painful condition that makes her skin as fragile as butterfly wings, Emma Fogarty was not expected to survive infancy. Today, at 41 years of age, she is the oldest living Irish person with the condition, continuing to defy the odds with extraordinary strength, resilience and remarkable achievements.

However, every accomplishment Emma makes comes with its own set of obstacles. EB is a cruel disease which causes her skin to bliste...