People with Chronic Fatigue Syndrome (CFS)/ME experience extreme tiredness and a range of other symptoms, including pain, headaches, impaired concentration and memory, anxiety, sleep problems, and palpitations. The condition can affect all areas of a sufferer's life and, in turn, the lives of those who are close to them.
This book provides the families and friends of people with CFS/ME with an accessible introduction to the condition, and explains what can be done to support those who have it. It offers useful advice on how to help a loved one cope with the illness, and suggests ways to help them with everyday issues such as personal hygeine, nutrition, finances, and relationships. Recognising that coping with the impact of CFS/ME can be just as difficult for the relatives and friends of those with the condition, it addresses the emotional, social, and practical aspects of having a loved one with CFS/ME, explains how to understand the changes in their relationship with the sufferer, how to manage stress, and where to go for further help and support. The book also includes detailed case studies and practical advice from a wide range of people with mild, moderate, and severe CFS/ME, and their loved ones.
This book offers much-needed information and support to the friends, families, and carers of people with CFS/ME. It will also be a useful resource for health professionals who wish to deepen their understanding of CFS/ME, including home helps, care staff, counsellors, therapists, doctors, and nurses.
About the Author
Table of ContentsAcknowledgments. Introduction. Why I have written this book and who it is for. My story. The different levels of CFS/ME: mild, moderate and severe. The whole person: CFS/ME, the body and the mind. 1. What is Chronic Fatigue Syndrome/ME? The Different Names for CFS/ME. The Symptoms. Stages of CFS/ME. What does it feel like to have CFS/ME? Why has my friend/relative not discussed this with me? How is it diagnosed? What causes CFS/ME? Treatment and management strategies. Conclusion. 2. CFS/ME and you (the friend of family member). Your reaction to the news. Changes in your relationship with the sufferer. Why it can be easy to say the wrong thing. Common misunderstandings. Support for you (the friend or family member). Conclusion. 3. Supporting your loved one to cope with the symptoms of CFS/ME. Helping with the physical symptoms. Helping with the cognitive symptoms. Helping with the emotional effects. Other factors that make coping with CFS/ME harder. Helping with making positive changes - treatment and management strategies. Preventing relapse and staying stable. Other things that can help. Conclusion. 4. Practical advice on how you can help with everyday life. Personal hygiene. Food and nutrition. Shopping. Mobility and travel. Domestic tasks, DIY and gardening. Money, employment and work. Caring responsibilities. Socialising and communication. Conclusion. 5. The top 10 tips on how you can help. Final note from the author. Resources/Directory of Support. References. Index.
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