Left Neglected

Left Neglected

by Lisa Genova

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Product Details

ISBN-13: 9781849835725
Publisher: Simon & Schuster Ltd
Publication date: 09/28/2011
Product dimensions: 6.00(w) x 1.25(h) x 9.00(d)

About the Author

Acclaimed as the Oliver Sacks of fiction and the Michael Crichton of brain science, Lisa Genova is the New York Times bestselling author of Still Alice, Left Neglected, Love Anthony, and Inside the O’Briens. Still Alice was adapted into an Oscar-winning film starring Julianne Moore, Alec Baldwin, and Kristen Stewart. Lisa graduated valedictorian from Bates College with a degree in biopsychology and holds a PhD in neuroscience from Harvard University. She travels worldwide speaking about the neurological diseases she writes about and has appeared on The Dr. Oz Show, Today, PBS NewsHour, CNN, and NPR. Her TED talk, What You Can Do To Prevent Alzheimer's, has been viewed over 2 million times.

Reading Group Guide

This reading group guide for Left Neglected includes an introduction, discussion questions, ideas for enhancing your book club, and a Q&A with author Lisa Genova. The suggested questions are intended to help your reading group find new and interesting angles and topics for your discussion. We hope that these ideas will enrich your conversation and increase your enjoyment of the book.
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INTRODUCTION

Sarah’s life is on track—the fast track. She and her husband both work 80 hour weeks at high-powered jobs in Boston, while spending as much time as possible with their three small children. Sarah is a juggler extraordinaire, keeping her demanding job and her family as balanced as she can. But when a car accident leaves her recovering from Left Neglect, a neurological impairment that robs her of her ability to control the left side of her body, she can barely get out of bed on her own. As Sarah struggles to resume her over-scheduled life, she must juggle new things—her son’s ADHD diagnosis, the return of her estranged mother, and her own limitations. Given a traumatic opportunity to reassess what is really important in life, Sarah must decide where her priorities lie.


QUESTIONS AND TOPICS FOR DISCUSSION

1. Is Sarah better off at the end of the novel than at the beginning? If so, in what ways?

2. Sarah has a series of anxious dreams in the nights leading up to the accident. How would you interpret these dreams? What do you think her subconscious is trying to tell her?

3. Is Sarah a better mother before or after the crash? How do you think she would answer that question? Consider the amount of time she spends with her kids, her ability to keep track of them, and the level of participation in their lives.

4. The second time Sarah and Bob meet with Charlie’s teacher about his progress in class, they learn that he is the target of some bullying. Ms. Gavin tells them many children experience this whether or not they have disabilities. Do you agree with Charlie’s teacher? Do disabilities like ADHD make a child more of a target than other kids?

5. Sarah’s Type A personality seems like it should help her through her physical therapy, but her friend and therapist Heidi believes she needs to stop trying to “win” and learn how to “adjust.” Do you agree? Do you think by adjusting to her new limitations, Sarah holds herself back from a quicker recovery?

6. If Sarah had recovered completely, do you think she would have gone back to her high pressured job at Berkley Consulting?

7. While Sarah is in the rehabilitation hospital, she and Heidi trade watches, even though Sarah’s is clearly the more valuable of the two. Toward the end of the novel, Sarah notes that Heidi is still wearing her expensive watch, but never asks for it back. Why do you think she doesn’t reclaim her watch?

8. After Sarah’s accident, Bob uses his cell phone at least once while driving in the car with Sarah and their kids. Why do you think he does that? Do we sometimes make exceptions for ourselves and do something unhealthy or risky in the interest of saving time or getting more done (like texting or using a cell phone while driving) even when we know it is dangerous? Why do you think that is?

9. At one point Bob argues that he doesn’t think Vermont is a place to live full time when they are young. He sees it as a place to spend their retirement. Do you agree? What are the benefits of living and raising a family in a suburban setting versus a rural one?

10.Which character do you identify with the most? Which the least? Who is your favorite?

11.Is Sarah’s mother’s response to Nate’s death understandable or unreasonable?

12.What did Sarah miss out on by having such a withdrawn mother? If her mother had been more available, do you think Sarah would be as high achieving?

13.Sarah’s trauma gives her a chance to reconnect with her estranged mother. Why is it so hard for Sarah to forgive her mother?

14.Can working mothers really have it all—a successful career, well-adjusted children, a great marriage, a sense of well-being, and personal happiness? Or is that a myth? Does something always have to give?

15.Sarah’s work/life balance before her disability is weighted toward work, whereas after it is weighted toward her family. How would you categorize your own work-life balance? Does Left Neglected make you reconsider any of your career decisions?

16.The back cover states that the novel is “about what we ignore and neglect in ourselves, in our families, and in the world around us.” What do you think you are neglecting in your life? Yourself? Your relationships? Your home? Your job?

ENHANCE YOUR BOOK CLUB

1. Sarah’s ideal life is to live in Vermont, close to winter sports and away from the bustle of the city. Imagine an alternative life for yourself. What does your Vermont look like?

2. The New England Handicapped Sports Association is a real organization in New Hampshire. You can check out their website at http://www.nehsa.org. The Photo Gallery, in particular, has a lot of great pictures that can help visualize Sarah’s snowboarding experiences.

3. Before the accident, Sarah muses about all the things that she wishes she and Bob could do, but don’t make time for. Make your own list of things that you don’t do as often as you’d like. Pick one to do before your next book club meeting, and share it with the group!

4. While she loves her high-powered job, Sarah periodically lets herself have timed crying sessions to cope with stress. Go around the group and share the coping mechanisms you use in your own life.

A CONVERSATION WITH LISA GENOVA

Your first novel, Still Alice, was inspired by your grandmother’s struggle with dementia. What or who was your initial inspiration to write about Left Neglect?

Over the years as a student and a neuroscientist, I’d every now and then come across a quick case study or mention of a patient with unilateral neglect. The information was almost always limited to pen and paper test examples of the symptoms of this condition—copying a picture of a face or a clock, circling all the letter A’s on a page, or naming all the items shown in a picture. The patients always neglected to include the left eye, the numbers 7-11 on the clock, and the A’s and items on the left side of the page. And while I thought this was fascinating, what captured my attention and wonder even more was imagining how these patients LIVE with unilateral neglect. What is life like outside the doctor’s office? How does someone with this get dressed, go to work, cook a meal, eat a meal, function in a relationship, navigate a whole world while only paying attention to half of it? Before I finished writing Still Alice, I knew I wanted to write about someone with Left Neglect next.

You note that you interviewed many different kinds of women in preparation for Left Neglected, including women with careers, disabilities, families, or all of the above. What was the most surprising thing you learned during these interviews?

I interviewed both men and women who have Left Neglect, their husbands and wives, their neurologists, acute care nurses, occupational therapists, physical therapists, speech therapists, rehabilitation specialists, physiatrists, and research scientists. I also interviewed a teacher and a guidance counselor to better understand how an elementary school handles a young child with ADHD, the executive director of New England Handicapped Sports Association, and women with educations and careers similar to Sarah’s.

The most surprising thing I learned was that someone with Left Neglect could learn to snowboard. I had originally imagined that Sarah would have to give up her love of skiing down Mount Cortland for some other, safer substitute—maybe cross country skiing on flat terrain or a sedentary activity like knitting. I have to thank Julia Fox Garrison here for telling me not to give up on Sarah and for suggesting that she might be able to make it down the mountain on a snowboard. I eventually met with Tom Kersey of New England Handicapped Sports who explained to me that Julia’s hunch was indeed correct, and he showed me how they would teach someone like Sarah to snowboard. I was so genuinely surprised and thrilled to be able to give Sarah a snowboard and get her back on the mountain she loves.

Which takes longer: the research for a book like this, or the actual writing? Which is more difficult: developing the research or developing the characters?

For both Still Alice and Left Neglected, I did the bulk of the research up front before beginning any writing—a period of about 3-4 months. Writing the story took about a year and a half. I enjoy both, but research is far easier. I love that I have the opportunity to learn more about these conditions and to be able to get at answers and subtleties that can’t be found in text books. It’s always such a privilege to learn about Neglect or Alzheimer’s from the experts—whether that means a physician or a person living with it. And while writing is truly a solitary endeavor, the research phase is a chance to reach out and include others in the process. For me, research first means reading everything I can find that might be relevant to Left Neglect, both in the scientific and clinical literature and also in nonfiction and even fictional accounts. I then find people who deal with the condition directly and talk to them in person whenever possible. For Left Neglected, this meant talking to people who have Left Neglect, their spouses, neurologists, nurses, rehabilitation specialists, occupational therapists, physical therapists, research scientists. It involved trips to Spaulding Rehabilitation Center in Boston, the Rehabilitation Hospital of the Cape & Islands, and New England Handicapped Sports Association.

Which character was the most fun to write? Which was the hardest?

I had a blast writing Sarah. She and I are similar in lots of ways—in age (although I’m older now; so not fair!), we both have three kids (I had two when I wrote the book, but I’ve since caught up), and I worked as a consultant for a strategy consulting firm for a couple of years, so I know that high-powered, crazy-houred work world that she inhabited. I also certainly know the challenges around paying attention to what really matters most and finding and maintaining a healthy balance in life. So, I can identify most easily with Sarah. But I’d say I enjoyed writing her the most for her humor. I laughed out loud so many times while writing something she’d say or think. I love her ability to see humor in even the darkest moments. I also really loved writing her dream sequences. I read a couple of books on dream analysis and had a lot of fun letting Sarah’s subconscious mind run amok in those dreams.

While Sarah was the most fun, she was also the hardest. Telling the story from the point of view of a character that is only aware of the right half of everything presented interesting writing challenges. There were many times where I had to stop and think, “Now how do I communicate to the reader what Sarah isn’t aware of if she isn’t aware of it??”

There has been a lot of writing lately on the dangers of multi-tasking and its effect on the brain. As a neuroscientist, what is your perspective on the fast-paced life exemplified by Sarah?

Recent advances in technology have made life more efficient in so many ways, but it has also put multitasking demands on our brains like never before—computers open to many screens at once (email, Twitter, Skype), text messaging, 100’s of channels on the TV, never mind the live human being trying to engage us in conversation. Our brains haven’t evolved to respond to so many stimuli all at once. So it often fails. When overburdened with stimuli, we can’t filter out irrelevant information well, and it becomes difficult to truly focus on any one thing.

Also, the kind of fast-paced life exemplified by Sarah causes stress. This feeling of stress triggers a cascade of physiological consequences. The hypothalamus and pituitary gland in the brain release hormones that cause the release of cortisol from the adrenal glands located on the kidneys. Cortisol increases heart rate, among other things, readying the body for ‘fight’ or ‘flight.’ Acutely, the release of cortisol is beneficial and helps you cope with whatever is urgently being demanded of you. But if the stress becomes chronic, maladaptive things begin to happen. Normally, the release of cortisol turns the hypothalamus and pituitary off, stopping the release of hormone, which in turn stops the further release of cortisol from the adrenal glands. It’s a nice, clean, negative feedback loop. But in the chronically stressed, the loop breaks. The brain stops reacting to cortisol. Our natural, automatic shut-off valve stops working. The brain keeps releasing hormone, and the adrenal glands keep dumping cortisol into the bloodstream, even when the stressful thing that initially triggered the stress response is no longer around. Chronic, elevated levels of cortisol have been associated with a weakened immune system, deficits in short term memory, chronic fatigue syndrome, anxiety disorders, and depression.


Left Neglected seems like a very clear call to slow down and reprioritize. Was that intentional on your part? Do you believe that ambitions like those expressed by Sarah at the beginning of the novel are manufactured by society, rather than innate?

I didn’t start out with that motive in mind. In fact, when I began thinking about this book, I only knew that I wanted to write about someone with Left Neglect. For a short time, I toyed with the idea of writing historical fiction about President Woodrow Wilson who had Left Neglect following the stroke he suffered while in office (Imagine that!). When I ultimately decided to write about Sarah, it became clear early on that her Neglect would serve as the vehicle for her real transformation, forcing her to slow down and pay attention to what matters most to her and her family.

I think everyone innately wants to feel productive, useful, and successful. But, in today’s culture, we seem to have this insatiable, competitive need to have more and be more. So, I think Sarah’s ambitions are driven both from within and from the influence of the people around her in Welmont and at Berkley.

What is the most challenging part about fictionalizing real afflictions like Alzheimer’s and Left Neglect?

I feel an enormous responsibility to portray these conditions as accurately as possible. Yes, Still Alice and Left Neglected are fiction, but my goal is always to tell the truth under these imaginary circumstances. When people with Alzheimer’s or Left Neglect take the time to talk with me, to share their own experiences, to let me inside their private lives, I have enormous respect for them and the information they’ve given to me. I know I need to use this knowledge with great care. And I hope that the stories I write will serve not only to entertain readers, but also to educate, to give real insight into what it’s truly like to live with these conditions.

Sarah finds herself most at peace on the slopes skiing or snowboarding. Where do you find your own moments of peace?

The beach (especially in the fall), yoga class, hiking a mountain trail, my yard.

Still Alice and Left Neglected are stand-alone novels. Have you ever considered writing a series, or books linked by recurring characters?

My ten-year-old daughter recently asked me a similar question, only her version involved vampires and werewolves. Many people have asked if I’d consider writing Still Alice from John’s point of view or a sequel to Still Alice about Anna or Lydia that takes place many years later, but I don’t think these are stories I’ll write. So, no series or recurring characters. That said, in Still Alice, Alice and John were supposed to go out to dinner with friends a couple of times. Their friends were Sarah and Bob.

What are you working on next?

My next novel, Love Anthony, is about two women unknowingly connected by an autistic boy.

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Left Neglected 4 out of 5 based on 0 ratings. 380 reviews.
irishbookworm21 More than 1 year ago
Like most working mothers, Sarah Nickerson never has enough hours in the day. Between her high-powered corporate job, husband, three children, two homes, Sarah has filled every minute of every day with something. Life is literally passing her by as she tries to have it all. One rainy night, Sarah is rushing back to her office to put in more hours, begins digging for her cell phone, and in an instant, her life is changed forever. When Sarah wakes up from a devastating car accident, she is suffering from Left Neglect. Due to damage to the right side of her brain, Sarah no longer recognizes anything on the left side. As she begins to work towards her recovery, Sarah also begins to realize all of the other aspects of her life she was neglecting. She may have had money, power, and prestige, but she was missing out on soccer games, piano recitals, and the lives of her husband and children. Sarah's injury and recovery force her to re-examine her priorities and re-evaluate what is really important. Left Neglected is a fantastic novel by Lisa Genova. Her characters, while affluent in this case, could really embody the lives of any working family. We all get caught up in the day-to-day activities and begin to take our blessings for granted. We simply get so busy in our lives that we forget to really live them. Genova crafts the story wonderfully, taking readers on a walk through the lives of Sarah and her family. If I had any negatives to post, it would be the sort of glossing over of the relationship between Sarah and her mother. Additionally, the story could have been built up further with regards to the other characters as well, as the length of the advanced copy of the book is only at just over 300 pages. That leaves a lot of additional space for learning more about the lives of Sarah and her family members beyond what is written. The hope here is that Genova's tale is enough to make us all take a step back and rearrange our priorities. Maybe we cut back on the things we really don't need. Maybe we have our children choose one sport instead of trying them all. And maybe, just maybe, we realize just how precious life is right now, instead of waiting for a tragedy to teach us differently. Disclosure of Material Connection: I received this book free from the publisher. I was not required to write a positive review. The opinions I have expressed are my own. I am disclosing this in accordance with the Federal Trade Commission's 16 CFR, Part 255 "Guides Concerning the Use of Endorsements and Testimonials in Advertising."
Massagetherapist3 More than 1 year ago
This book was such a great read. I had a hard time putting it down. It really shows the struggles of traumatic brain injuries. I have a family member with one and it was interesting to understand where she is coming from. This book had me laughing, crying, and feeling great! I highly reccomend it!
Lynie More than 1 year ago
Sarah Nickerson has it all; a loving husband, three young children, a high powered job, an expensive home and a vacation home in Vermont. She also has all of the accompanying stress of trying to be everything to everyone. Rushing as usual while trying to keep all of her balls in the air, Sarah is driving to work in the rain while on her cell phone when the unthinkable happens. She has a car accident while going 70 mph and wakes up in the hospital with a severe brain injury that has caused a condition called left neglect. Sarah's brain is unable to recognize left; the left side of her body or anything in her left field of vision. LEFT NEGLECTED is more than just the story of Sarah's injury and steps to recovery. There's the underlying story of the neglect she experienced growing up with a mother who was overwhelmed by depression and grief following the accidental drowning of Sarah's young brother. As she faces her rehabilitation and her future, she also begins to face her relationship with her mother and the dawning realization that her own family has been left neglected because of the lifestyle she and her husband Rob have chosen. LEFT NEGLECTED is not all doom and gloom. Ms. Genova has injected a sense of humor into her characters' dialog that makes the story easier to read and thoroughly enjoyable despite the dark subject matter. Lynn Kimmerle
Anonymous More than 1 year ago
Lisa Genova is great with writing novels like these, where people have their regular life taken away in an instant due to a mental health condition. This book made me realize that we can all end up this way if we take life for granted. This theme ran throughout the book. Especially when we see the trouble the protagonist has even trying to get across the room and how taking time from her demanding job due to her injury was unfortunately the only way she learned how to enjoy peaceful family time. So worth getting!!
Sarah Parmer More than 1 year ago
I thought Still Alice was good, but this book is phenomenal! I literally could not put it down. Both educating and inspiring, Left Neglected is an absolute must read.
Anonymous More than 1 year ago
While getting to know these characters, I found myself learning and getting deeper into the story! If you are a mom you must read this! If you work you must read this.....life goes on and this character is so easy to relate to! Sit down and learn! What a wonderful book!
Anonymous More than 1 year ago
Left Neglected was different, interesting and well written. While the characters were relatable they were also a peek into a difficult situation that few have experiaanced. Truly an exciting literally experiance.
sherri brewer More than 1 year ago
This book makes one rethink the priorities in life, work, and family. Witty and so well written that it was difficult to put down. This happens to be the very first book that I have read on my nook. I am now going to read her first novel.
Anonymous More than 1 year ago
I could not put this book down once I started it, except to be with family during the holidays, and even read most of it to my husband while we were driving between Illinois and Colorado after Christmas. We both enjoyed it! My husband could relate on a lesser degree to some of Sarah's feelings and dilemmas due to a much less severe brain injury he suffered in a motorcycle accident that almost took his life 6 years ago, even though he was wearing an excellent helmet at the time.
Anonymous More than 1 year ago
I don't think I've ever cared so deeply about a character! Great story, beautifully writen.
Anonymous More than 1 year ago
I enjoyed the story and can't imagine that it is true. It was an amazing journey.
Anonymous More than 1 year ago
FASCINATING!!! Can't imagine having this type of disorder. And finally, what an 'awakening' from the lady...instead of flight, she chose fight! Kudos!!!
aimlyss More than 1 year ago
I loved this book and would highly recommend it to anyone. In fact, I'm going to suggest it to my book club. Left Neglected (clever title) is about a woman that suffered a traumatic brain injury and wakes up with a condition called Left Neglect. She doesn't respond or see anything on her left. There is a passage in the book that summed up what she was going through and how it felt, it made me "get" it. Sarah's husband was urging her to "look left" and she asks him to describe the room to her, which he does. Then she asks him, "Okay, now what if I told you that everything you see is only half of everything that's really here? What if I told you to turn your head and look at the other half? Where would you look?" Definitely one of my favorite books of 2011 and so far this year. Read it, you won't be disappointed!
Anonymous More than 1 year ago
Page turner! Interesting psychological issue and about the strength of getting through it. Inspiring! You dont read many books like this.
The_hibernators More than 1 year ago
Sarah Nickerson is a type-A mother-of-three who is living the expensive, busy life of Big Business in Boston. Although Sarah always talks on the phone while driving, THIS time she has a terrible accident and ends up with a brain injury. With Left Neglect, Sarah is unaware of the left sides of everything (including herself). With this new disability, she must pick up the pieces of her shattered life-in the process she reconnects with her family. This book was fantastic in a variety of ways. It describes a fascinating neurological condition (Left Neglect) while enveloping the reader in a bittersweet story about family, identity, and disability. Definitely worth reading!
Anonymous More than 1 year ago
When I first heard about this book, I thought the story line of a working mom recovering from a traumatic brain injury sounded interesting. Then I saw the author was a neuroscientist and was afraid it might have too much medical technology that would take away from the story. Obviously, I decided to give it a try anyway and am very glad I did. The story is very well written and will make you both laugh and cry. It is also an eye opener as well into the effects of “Left Neglect”, which is something I had never quite heard of before. If I hadn’t known of the author’s background, I would have thought the symptoms and hurdles within the story were fictional and overly creative. Instead, you find them believable and even more interesting. You want to be there to cheer on any little improvement and be there to pick her up when she falls. This book is far from what I consider to be “chick lit” but I do think female readers will enjoy it more, especially working moms.
Anonymous More than 1 year ago
This book really made me think about how I live my life causing me to take a hard look at what's important and what may not be.
Anonymous 3 months ago
Another reason to leave your phone at home. Accidents are life changing.
Anonymous More than 1 year ago
PagesofComfort More than 1 year ago
For those of you who follow or have read posts on my blog, you probably know that I'm a big fan of Lisa Genova's work. I really loved Still Alice and Inside the O'Briens was another great work as well. I knew when I saw this one on the shelf that I had to grab a copy. I love how she takes this very real, very scary disorder, and creates a captivating book. I love learning about these disorders, but it also makes me very sad for those that have to endure these difficulties. I can't imagine not being able to see or use anything on the left (or right) side of your body. It's a crazy concept to me and I've never heard of anything like it. The characters in this book are really sympathetic too. All Sarah wants is to go back to her normal life that she's used to. But after the accident, she has to learn that she can't pick up where she left off. It's sad to watch her struggle through the daily tasks of walking, eating everything on her plate, using both hands, etc. And her husband is really great to her. Sure, they struggle with her new disorder and it's something they both have to cope with, but he does everything he can to make things easier, including covering their house with florescent tape to help her see things easier. The title of this book is very creative and the storyline is incredibly original. If you're looking good medical-type book, this is one I'd recommend. If you're not sure about the medical language and aspects of the book, don't let it scare you away! It's truly a good book and very eye-opening.
Anonymous More than 1 year ago
It wasn't what I thought it was going to be about.it was OK.it was a page turner.second book I've read of hers.
AynGee476 More than 1 year ago
This book presents interesting biological information about an issue that we should all be aware of: the risk for stroke. The story is absorbing and follows a realistic plot in which we learn the implications of the impact and recovery from this devastating illness.
Anonymous More than 1 year ago
Anonymous More than 1 year ago
Anonymous More than 1 year ago
Great story, well written, and the author did her homework on fact checking. Well worth the read!